The NINR EOLPC multimedia page is a central location to view videos, listen to podcasts, and more related to palliative care and end-of-life research. For more videos from NINR, visit the institute's YouTube Channel at www.youtube.com/ninrnews.
Care for Children With Serious Illnesses: This two and half minute video provides a straightforward overview of pediatric palliative care for families, providers and organizations.
Pediatric Palliative Care: A Personal Story: This vignette shares the story of Rachel—a pediatric neuroblastoma patient—and her family. The story demonstrates how palliative care can positively influence a patient’s and family’s experience with illness. Video length: 3 min, 13 sec.
NIHSeniorHealth.gov End of Life Module Videos:
Preparing for the End of Life: Co-produced by NINR and the National Institute on Aging for the NIHSeniorHealth website, this video seeks to help people by answering one of life’s most sensitive questions: how can a person best prepare for the end of life?
What Can Be Done About Pain at the End of Life?: Co-produced by NINR and the National Institute on Aging for the NIHSeniorHealth website, this video describes ways to control pain at end of life.
The Science of Compassion: Future Directions in End-of-Life and Palliative Care - This Summit examined the state of research and clinical practice in end-of-life and palliative care and provided an opportunity for scientists, health care professionals, and public advocates to come together to catalyze and shape the future research agenda for this critical scientific area.
Highlighted NINR-Funded Research:
Preparing Families for the Dying Process: Dr. Debra Wiegand, University of Maryland School of Nursing, explains her NINR-funded EOL Research.
The Palliative Care Research Cooperative (PCRC): Dr. Jean S. Kutner, co-PI of the PCRC describes the formation of the Palliative Care Research Cooperative (PCRC), an interdisciplinary group funded by the National Institutes of Health and National Institute for Nursing Research. The PCRC is attempting to expand the evidence base in palliative care by addressing such topic as when to discontinue disease-modifying medication in patients with limited life expectancy, appropriate initiation of hospice, and best practices for psychosocial support for patients and caregivers. Listen I Download: mp3